- Community-Build stronger community
- Compassion- Lead with care and respect
- This position is responsible for the oversight and expansion of NKF's activities and capabilities in conducting patient outcomes research, with a focus on the KidneyCARETM Study. The KidneyCARE Study is the first national and international patient registry with the ability to collect both patient reported outcomes (PROs) and electronic health record (EHR) data to provide a full picture of the patient. The project will not only be patient interfacing but also researcher oriented with a strong emphasis on stakeholder engagement. It will lead to additional research opportunities through collaboration with Study partners and other external stakeholders.
- Manages the day-to-day operational duties with Study contractors. This includes overseeing quality control, liaising with other NKF departments to contribute expertise, management of timeline, deadlines and overall cash flow and budget.
- Runs NKF coordination, management and strategic planning with health system partners to ensure seamless execution of front-end and back-end syncing. Manage the consent development process, legal process for access to data in addition to other contract elements.
- Explores and facilitates patient outcomes research opportunities, within the KidneyCARE Study and with external partners such as health networks and academic nephrology departments.
- Coordinates strategic planning among key experts, most importantly among governance committees: technology, data input and integration, data use and publication and steering committee.
- Aligns registry technology with educational, data collection, and website strategy in addition to future activities lending value to the overall registry.
- Develops and assures a continuity of clear written and verbal communication to internal project leads, governance chairs and members, and NKF leadership. Proactively communicates information to volunteers and staff as necessary.
- Creates and manages ongoing timelines for all phases of the Study expansion.
- Supervises the Patient-Centered Research Director
- Enjoy plenty of vacation time, sick leave, and holidays so you can recharge, regroup or reflect—and come back ready to tackle anything.
- Support for
- Creative savings: Take advantage of flexible spending accounts to save on eligible healthcare and dependent care expenses.
- Support When You Need It: Access confidential counseling, support services, and resources through our Employee Assistance Program.
- Join a team that's passionate about making a difference and guided by values like integrity, compassion, and innovation.
- Ability to interact effectively with all levels of staff and all health care volunteers.
- Ability to deal effectively with deadlines and time pressures and to manage multiple tasks simultaneously.
- Flexible for overnight business domestic and international travel including weekends and weekdays.
- Proficient with Microsoft Word, Excel, and PowerPoint.
- WORKING CONDITIONS, EQUIPMENT USED AND SPECIAL INFORMATION
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Senior Director, Patient Outcomes Research - New York, NY, United States - National Kidney Foundation
Description
National Kidney FoundationFueled by passion and urgency, National Kidney Foundation is a lifeline for all people affected by kidney disease. As pioneers of scientific research and innovation, NKF focuses on the whole patient through the lens of kidney health. Relentless in our work, we enhance lives through action, education, and accelerating change.
Communication- Empower with information
Your Health:
We've got your back with top-notch medical, dental, and vision insurance plans for you and your loved ones.
At the National Kidney Foundation diversity, inclusion, and equal opportunity applies to both our workforce and the communities we serve as it relates to kidney health and kidney disease prevention.
It is the policy of NKF to provide equality of employment opportunity regardless of race, creed, color, qualified handicap or disability, national origin, religion, marital status, sexual orientation, age, gender, political affiliation or veteran status, or any other factor or reason prohibited by relevant local, state, and federal fair employment laws.
Reasonable accommodations may be made to enable individuals with disabilities to perform the essential functions. The National Kidney Foundation does not accept resumes from third-party recruitment/search firms.The salary range and/or hourly rate listed is a good faith determination of potential base compensation that may be offered to a successful applicant for this position at the time of this job advertisement and may be modified in the future.
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