Patient Programs Coordinator - Peabody, United States - The Progeria Research Foundation

Description

• Track potential new patient inquiries and follow patient family/physician communications through either confirmation of Progeria cases, referrals to appropriate colleagues, or other changes in status
• With appropriate training, consent children and young adults with Progeria and their families to PRF's research programs and accurately track program enrollment numbers
• Collaborate with the Research Laboratory Coordinator to facilitate distribution and collection of diagnostic testing and other blood collection kits to and from families and researchers throughout the world
• Offer support to physicians from around the world registering for a drug access program and track progress and participation in said program
• Participate in weekly meetings with internal team to discuss status of open cases and todos and with external team at Boston Children's Hospital to assist with clinical trial preparations and exchange updates
• Prepare reports and data pulls, research specific genetic mutations and other topics in the field, participate in the writing of scientific manuscripts, and provide administrative and research support on additional projects, as directed by the Medical Director
• Provide assistance to colleagues and contribute to team effort through other tasks, as needed

• Master of Science (MS) in a relevant field required
• Minimum of 3 years experience working in a coordinatortype role preferred
• Experience working with a culturally, economically, lingually, and/or geographically diverse population strongly preferred
• Experience in research, scientific writing, and publication process strongly preferred
• Excellent verbal and written communication skills
• Strong attention to detail and organizational skills
• Flexible team player, strong multitasker
• Desire to learn and to grow in this role and with the Foundation
• Proficient in appropriate software including but not limited to: Microsoft Office Suite, Adobe Suite, video conferencing software

• Dental insurance
• Health insurance
• Paid time off
• Retirement plan

• 8 hour shift

• Peabody, MA 01960: Relocate before starting work (required)