President/Chief Executive Officer, National Eczema Association - Novato, CA, United States - Access Philanthropy

Description

The National Eczema Association is the driving force for an
eczema community fueled by knowledge, strengthened through
collective action, and propelled by the promise for a better
future.

ORGANIZATION DESCRIPTION

Founded in 1988, the National Eczema Association (NEA) is a
501(c)(3) nonprofit and the largest patient advocacy organization
serving the 31 million Americans who live with eczema and those who
care for them. NEA provides programs and resources to elevate the
diverse lived experience of eczema and helps patients and
caregivers understand their disease, actively engage in their care,
find strength in one another, and improve their lives.
Additionally, NEA advances critical eczema research and partners
with key stakeholders to ensure the patient voice is represented
and valued in education, care, and treatment decision making. The
eczema community is at an exciting juncture, with increased
recognition of the seriousness and burden of eczema and a surge in
scientific interest and development of new treatments. Bolstered by
NEA's strategic plan, Blueprint
2025 , NEA is a driving force toward the ultimate vision: a
world without eczema.

Garnering significant support and recognition, NEA has:

• Launched the successful and growing Seal of AcceptanceTM
  program, empowering patients to find personal care and household
  products suitable for eczema and sensitive skin.
• Invested $4 million in research grants, supporting more than 80
  funded studies, 48 research institutions, and 72 grant
  awardees.
• Advocated at the state and federal levels for improved policies
  related to step therapy, out-of-pocket costs, and medical
  switching, including successful inclusion of eczema in the
  Department of Defense Peer-Reviewed Medical Research Program.
• Launched the award-winning EczemaWise – a free eczema tracker
  app to help patients and caregivers manage their eczema.
• Created the thriving and impactful NEA Ambassadors program,
  ensuring that the patient voice and expertise are at the table
  where and when decisions about their care are being made.
• Received a four-year Chronic Disease Awareness and Engagement
  grant from the Centers for Disease Control and Prevention.
• Transformed Eczema Expo into the can't-miss annual gathering of
  the eczema community including patients, caregivers, healthcare
  providers, and partners.

Since 2017, NEA has more than doubled its revenue to a projected
$7.8 million in 2023 and tripled its local staff to 30 living
throughout the United States. They are highly committed to NEA's
mission and community and enjoy a positive and collaborative work
culture. As one staff member put it, "Whether you are staff, a
patient, a family member, an Ambassador, or an industry partner, at
NEA you are human first."

Learn more at .

JOB SUMMARY

Selected by, reporting to, and working closely with the Board of
Directors, the President/Chief Executive Officer (CEO) will provide
the leadership, vision, and strategic direction necessary to
advance NEA, its staff, and the community it serves to the next
level. They will: manage day-to-day operations and activities;
supervise a dedicated, empathetic, and productive staff; and be the
visionary, inspirational, and compassionate face of NEA.

A key responsibility for the new CEO will be to lead development
of the next strategic plan. They will have primary oversight for:
developing and implementing strategies that result in increased
visibility; new and more diverse sources of funds; significantly
increasing the number of donors and dollars raised; expanding NEA's
patient-centric advocacy capabilities; and growing NEA
exponentially. The CEO will also steward and expand NEA's
partnerships in the pharmaceutical and medical communities.

The CEO focuses on long-range goals, growth, strategies, plans,
and policies, routinely exercising discretion and independent
judgment in the performance of their job duties. With NEA's
leadership team, this person will champion and enhance, as
appropriate, initiatives related to NEA's
threePillarsof programmatic focus for meeting the needs
and leveraging opportunities for all those affected by eczema:
Community, Knowledge, Collective Action.

IDEAL CANDIDATE

• An innovative leader who has exceptional character and
  self-awareness and who acts with integrity and empathy; a dedicated
  advocate for people with eczema and their loved ones.
• Approachable with outstanding communication and interpersonal
  skills including the ability to communicate with a broad range of
  audiences both internal and external in a clear, concise,
  persuasive, and confident manner; outgoing, charismatic,
  straightforward, and self-possessed; one who welcomes new ideas,
  shares information readily, is an active listener, and respects
  what others bring to the table; someone able to engage internal and
  external individuals of diverse backgrounds at all levels in a
  variety of social and business settings.
• Effective, with the breadth of capabilities to lead and steward
  both internal strategic work and external relationships; patient
  yet decisive; intuitive and inclusive, with the organizational
  sensitivity to gain the support and confidence of others.
• A strategic leader with the discipline and persistence to
  support a strong, energized team environment based on trust;
  someone who invites diverse viewpoints.
• A consensus builder with a high energy level who is able to
  foster a sense of common purpose throughout a geographically
  dispersed staff, board, and community.
• Someone who manages with business intelligence, is analytical,
  and possesses a balance of practical and reality-based
  experience.
• Someone with a deep commitment to shared leadership and to a
  collaborative and transparent approach in the management of the
  organization.

KEY RESPONSIBILITIES

Leadership and Organization Management

• Provide thoughtful and visionary leadership that is transparent
  and empowering in a manner that supports and guides the
  organization's mission.
• Present strategies and plans for organizational impact,
  garnering Board approval and support as needed. Contribute to the
  strategic plan and drive its implementation.
• Establish goals, objectives, and operational plans in
  collaboration with the Board of Directors and leadership team.
• Apply innovative thinking and performance measurements to
  analyze and support strategic decision making.
• Oversee NEA's day-to-day operations and ensure its overall
  success; lead, positively motivate, and inspire a committed staff;
  understand their strengths and concerns and encourage their
  professional growth; delegate authority appropriately.
• Foster the collegial working environment that will enable the
  staff to continue to function productively and effectively as a
  whole in a culture committed to the remote work environment.
• Organize, motivate, and mentor internal team leaders to
  strategically and effectively grow NEA's impact, programs, and
  fundraising.
• Continually foster a culture that encourages communication and
  collaboration between departments and recognizes positive
  contributions.
• Inspire a strategic, professional, results-driven environment
  across the organization.

Development and Fundraising

• Drive development and fundraising in collaboration with team
  leaders and leveraging the Board of Directors.
• Initiate, cultivate, steward, and extend relationships with the
  organization's donors and supporters.

Financial Management and Administration

• Provide strategic leadership and hands-on management for all
  administrative and operational functions of the organization in
  accordance with the mission, objectives, and policies.
• Assume responsibility and accountability for the fiscal
  integrity, stability, and sustainability of the organization by
  prudently directing resources and maintaining healthy cash flow,
  adequate reserves, and robust fundraising.
• Build, administer, and monitor Board-approved budgets; ensure
  maximum utilization of resources and optimum financial positioning
  for the organization.

Governance

• Build strong relationships with the entire Board, providing
  leadership and support to members, communicating effectively, and
  providing them with the information necessary to function with best
  practices and to make informed decisions in a timely and accurate
  manner.
• Prepare for and attend all Board meetings, providing regular
  reports and updates to ensure that Board governance and fiduciary
  responsibilities are met.
• Effectively interact with the Board as needed to build
  consensus and support for CEO initiatives.
• Implement Board policies and procedures.
• Work closely and openly with the Board and its committees,
  ensuring ongoing communication of risks and challenges as well as
  opportunities and successes.

External Relations and Communications

• Working closely with senior leadership, oversee all internal
  and external communications for NEA including all aspects of the
  organization's marketing and public relations; ensure that the
  organization and its mission, programs, and services are
  consistently presented in a strong, positive image; cultivate and
  nurture relationships with the media; expand NEA's use of
  communications tools to reach the wide diversity of current and
  prospective community members and partners.
• Cultivate relationships with the broad base of NEA supporters
  including patients and their families, health professionals and
  other caregivers, Ambassadors and other volunteers, advocates,
  donors, corporate funders, and scientific research program
  grantees.
• Represent the organization and serve as chief spokesperson
  publicly at events, conferences, and partnership meetings.
• Present and promote the organization and its mission, programs,
  and partners in a consistently positive manner.
• Ensure high visibility to prospects and the public and build
  interest in engaged philanthropy.

IDEAL EXPERIENCE

The CEO should have proven experience taking an organization
from one level to the next, shepherding it through the challenges
and leveraging the opportunities that come with exponential growth.
They should have the following experience and qualifications.

• Personal or professional familiarity with and/or an ability to
  quickly gain an understanding about the eczema ecosystem,
  especially eczema research and treatment, and how NEA can best
  fulfill its mission and goals.
• Seasoned business acumen with at least 10 years of broad-based
  leadership and management experience in the for-profit, public, or
  not-for-profit sector, ideally within a health-related field;
  proven strategic planning, managerial problem-solving, resource
  development, and financial management abilities; experience growing
  an organization significantly in both revenue and scope; experience
  with major donors.
• Ability to work collaboratively with a board of diverse
  backgrounds, personalities, and accomplishments.
• A proven record of success leading a staff of similar size and
  building consensus for strategic plans and executive decisions;
  ability to recruit and retain talent on both the staff and the
  Board; success as a creative, thoughtful, and resourceful risk
  taker with knowledge of when to move forward and when to hold
  back.
• Experience with a thought-leader organization or taking one to
  that level, even as the external organizational ecosystem advances
  and shifts.
• A successful track record in fundraising, with a demonstrated
  ability to attract financial resources from corporations and
  individuals; the ability to personally interact with and cultivate
  donors; knowledge of the philanthropic community is a plus.
• Excellent public speaking skills for both formal and
  extemporaneous presentations; experience working with the media is
  a plus.

COMPENSATION

The salary range for this position is $275,000 to $325,000, and
NEA offers an attractive benefits package.

The National Eczema Association
is an equal opportunity employer. All qualified applicants will
receive consideration for employment without regard to race, color,
religion, national origin, age, sex, pregnancy (including
childbirth or related medical conditions), sexual orientation,
gender identity or expression, disability, genetic information,
military or veteran status, citizenship, or any other
characteristic protected by applicable federal, state, or local
law.

Applications, including cover
letters and resumes, or nominations should be sent to G. Angela
Henry and Mark Tarnacki at .