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    • Data Specialist, Clinical Research - New York - Simons Foundation

    Simons Foundation
    Simons Foundation New York

    1 month ago

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    Description

    Data Specialist, Clinical Research

    Position Summary:

    The Data Specialist, Clinical Research will support various data activities for clinical cohorts supported by the Simons Foundation. This includes contributing to data standardization and release, quality assurance of clinical datasets, liaising with external researchers, collaborating with Informatics on platform development, handling data queries, and preparing descriptive statistics.

    This is a full-time position located at the Simons Foundation's offices in New York City.

    Essential Functions/Responsibilities:

    • Contribute to data quality/cleaning and release efforts for all SFARI cohorts and other clinical data sets.
    • Contribute to data standardization to be applied across cohorts and datasets hosted by SFARI and test workflows for clinical issues/accuracy.
    • Assist with developing and testing relevant data collection and review platforms.
    • Advise Informatics team on the management and release of clinical data and the implementation of data standardization.
    • Assist the Informatics team in gathering requirements for software development related to data collection and release.
    • Update SFARI Base documentation (welcome packets, data dictionaries, release notes, etc.).
    • Collaborate with SPARK and Simons Searchlight teams at Boston Children's Hospital as well as external subject matter experts to identify relevant measures for use in cohorts and plan order of release based on research priorities and other needs.
    • Assist with providing phenotype data from clinical cohorts.
    • Prepare data for internal and external inquiries, publications, posters, presentations, and community reports.
    • Collaborate with SFARI Senior Scientist and Communications team to develop effective methods to disseminate reports and other relevant information to participant and research communities.
    • Aid other data-related projects at the Simons Foundation as needed.

    Minimum Qualifications:

    Education:

    Ph.D./Ed.D and/or Master's degree and 2 or more years' experience in related research or clinical field using the above skills preferred.

    Experience:

    • Experience with human participants research preferred.
    • Experience with data entry, scoring, and/or summarizing surveys and common psychological measures (e.g., IQ tests, ASD instruments such as ADOS, ADI, SCQ, etc.) and familiarity with interpretation of measures and scores.
    • Familiarity with ASD and other neurodevelopmental diagnoses.
    • Proficiency with basic data
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